Dedicated to defeating dystonia

Reclaim your life from dystonia

Defeating Dystonia is grounded in extensive neuroscience research into focal task-specific dystonia (FTSD), along with firsthand experience and recovery. It presents a proposed cause, mechanism, and cure for FTSD through a structured motor retraining protocol.

Mission

Why Defeating Dystonia exists

Defeating Dystonia is an organization built to end FTSD. The mission is straightforward: to help cure as many people with FTSD as possible through a structured motor retraining approach, and to make that approach mainstream and accessible so patients can find it quickly, understand it, and apply it, instead of spending years sifting through noise and dead ends.

Right now, when people search dystonia online, they are often met with major hospital websites that still describe it as incurable and lifelong. For patients, that message can be devastating.

Part of the reason patients keep encountering that message is the research-to-practice lag. Public-facing clinical information is not always updated to reflect newer research, leaving a gap between the research literature and what is communicated in everyday clinical practice and public-facing resources. Defeating Dystonia exists to close that gap by making the path to cure easier to find, clearer to understand, and practical to follow.

Research

The research

Here are the two papers that present the proposed framework for FTSD.

Paper 1

A Proposed Cause, Mechanism, and Rehabilitation for Focal Task-Specific Dystonia: A Theoretical-Empirical Approach

Paper 1 introduces the core M1 synergy framework and the structured motor retraining protocol.

Read Paper 1
Paper 2

Focal Task-Specific Dystonia Beyond M1: Network Adaptations and a Synergy-Based Taxonomy of Dystonia

Paper 2 extends the model beyond M1, reframing network-level findings as downstream adaptations and proposing a synergy-based taxonomy of dystonia.

Read Paper 2
Videos

Videos

A conversation between Steve Gilson and Norman Lu. Steve recovered from FTSD within one month after applying below- or at-threshold retraining (BATR).
The Mechanism of Dystonia | Part 1
The Cause of Dystonia | Part 2
The Cure for Dystonia | Part 3
Contact

Get in touch

Feel free to reach out with questions or for guidance on how to apply the retraining approach to resolve your FTSD.

Email: defeatingdystonia@gmail.com
Message board: Leave a public note →

You can contact me directly by email or post on the community message board to ask a public question, share progress, or discuss and learn with others.